6 years 10 steps back

6 whole years have passed since I was first diagnosed, 6 bloody years that’s a lonnnnng time and very little has changed. It still controls my life, I think about it when I’m trying to sleep and it’s the first thing I think about when I wake up. How sad. 

Bloody shit.

Treatment is fucking shit too, this new treatment plan has caused me nothing but crap. Every week headaches, migraines, water infections bla bla bla it can really get a girl down ...

Wouldn’t be so bad if it WASNT ALL FOR NOTHING

Yep, new in on Friday is that something “new” has appeared in my sacrum, brilliant.

It gets better, they aren’t sure what it is as the scan report is ambiguous. Excellent. Once again I one knows what’s going on and no one is capable of making a bloody decision.

It’s going for a second opinion on Thursday this week and I’ll get an asset on Friday. Apparently. Not going to hold my breath.  

I think I’m covering all outcomes when I say

1. they still can’t decide but 

a) I continue on current treatment

b) I start new treatment -tablet / injection 

c) I have more chemo

d) I have more radiotherapy

e) I have more bone biopsies 

2. It has got worse and is in fact more bone mets 

a) I continue on current treatment

b) I start new treatment -tablet / injection 

c) I have more chemo

d) I have more radiotherapy

e) I have more bone biopsies 

3. They decide it’s not bone mets

a) I continue on current treatment

b) I start new treatment -tablet / injection 

c) I have more chemo

d) I have more radiotherapy

e) I have more bone biopsies 

4. They still have no idea what it is

a) I have more bone biopsies and they Danny about some more and I don’t sleep

Answers on a post card