Tuesday, 13 April 2021

Oh and by the way...

Another moaning account of my life for the last 10 weeks - you have been warned.

Toothache - Jesus fucking Christ, the next tooth along to where I had all of the other issues (when I say issues, I mean when parts of my jaw FELL OFF)which then delayed my treatment and the bones mets started getting worse.

Excellent

My god the pain is incredible. After sacking my last dentist I think I rang about 15 dentists in the area, no one is taking on NHS patients so I went private. Turns out, no great shock, that I need a root canal and a crown. £1,500. So, after last time I’m sure the hospital told me any future procedures like this needed to be done by them because of the potential side effects of my bone injections. FOUR weeks of phone calls to the hospital chasing and chasing, pretty much begging I got a referral to the hospital dentist. A week later I chased up my appointment only to be told that they don’t carry out these type of procedures and I’d have to see a regular dentist. And so I got myself the next available appointment with them -4 weeks time.

So that’s me pretty much in bed the entire time, toothache, still in pain from my trip down the stairs and bladder spasms. It’s been horrible, plus the fact that we’re still in lockdown so I can’t see anyone, I don’t know how Arron has coped, I really don’t, I cry most nights, I wake up in pain crying, he gets no sleep and still has to go to work. He deserves a knighthood   ( I would never tell him that!)


Then I had an overnight stay in hotel Burton Hospital, raging temperature, vomiting for 4 days... the staff in A&E were incredible, absolutely amazing, but they didn’t quite know where the infection was. It’s safe to say that the surgical team didn’t want me and neither did the medics, in fact the medical team made me cry with how rude they were and made me feel like I was making the whole thing up - not sure how you can fake your bloods but hey. So I had a CT scan incase I had kidney stones, that came back “clear” so I was put under the care of the medics and put on a ward overnight for IV fluids, antibiotics and antisickness. I’d like to thank the ward sister that burst through the doors at 2am shouting that it was officially spring and the clocks had gone forward, that was a highlight, along with being denied analgesia incase I was sick again. Not one person listened to me about my tooth and I was treated for sepsis.

The next morning after politely telling the HCA that I could walk and there was no way that anyone was assisting me to have a shower, I was seen by a doctor.
She said that because I was feeling much better (was I? Pretty sure I’d just filled 2 sick bowls), they were going to discharge me and put it all down to me having my second covid vaccine. Oh and her boss had checked my “clear” CT scan and had noticed that one of the cysts on my liver was larger than the others so there is a 50% chance it could be cancer but she would email my Oncologist and they would look into it but could take a couple of months. Sorry what?!

After being told that I didn’t need to wait for my discharge letter and I wasn’t going home with any medication (clearly the antisickness meds I was having at home weren’t working but who cares?) me and my temperature of 37.9 left the ward and went home. 3 bottles of Orangina later I was back in my own bed.

My sister came round and did my housework, ran me a bath, absolute angel and brought meals on wheels, I have zero energy and I’m reliant upon lucozade.


Fabio showed no fucks and carried on being a little dickhead, barking for no apparent reason and just pissing where he likes....


I spoke to my secondary nurse to tell her about the scan and she said that she would put it through MTD and I’d have the results on the 16th April,
I then called the dentist to see if there had been any cancellations but they only had a small appointment available but could do something to get me out of pain - amen for that!!

My god the pain!!!!! Jesus Christ, I’ve been to the dentist and they’ve started the treatment - they’ve taken the old filling off, removed the plaque that was sitting on the nerve (apparently I’m unlucky because there wasn’t that much plaque but what there was, was sitting on the nerve), I mean really, what did I expect? So I’ve got antibiotics and a temp filling. That was yesterday, last night I almost tried crack I was in that much bastard pain, honestly it was awful, so in my stupid tiny mind I decided to take codeine, knowing that it would make me sick.... didn’t even touch the pain and my god was I sick... sorry, still sick today, and still in pain .... crack anyone?

Hollie and Sammy have really saved the day, 
Hollie got me a nightie so there’s nothing pressing on my bladder/stomach and Sammy got me an electronic heat pad - Arrons well happy that he no longer has to go up and down the “death stairs” filling my hot water bottles up! It’s really taken the edge off and I’m no longer googling crack pipes...



12th April came and went, I remained in bed but could see everyone on social media out with friends, all I could think about was having a larger shandy in a beer garden but as I could only just make it to the bathroom I was sensible. Also my blood pressure had seen better days and I didn’t even have the energy to get dressed 🙄




I went for the dreaded results....the CT is unclear, it’s not a cyst, it’s either a blood vessel.... or cancer... so on Friday I had an MRI and now the waiting starts over again.

I can’t thank everyone enough for their messages, might take me a while to reply sometimes but I really appreciate it, along with all of the lovely flowers from Amber Lodge, Andrea, Sammy, Rhian and my sister in law Leanne, I think we need to get some more vases!



















I’ll be lucky to get 1 Pay Day chocolate bar!

I did manage to go to the beer garden with Andrea to meet my brother for a Diet Coke!! It was amazing, the sun was shining everyone was happy it really was lovely, hopefully there are more days like this to come!

For now I’m resting again in bed, trying to get the energy to strip the bed🙄 and trying not to think about the likely outcome of May 14th. Deep down I know what’s coming, I’m not right, somethings going on...

I’m not sure I can do it again.

Tuesday, 12 January 2021

The Xmas of broken bones and boilers

After last years Christmas, which was fab until Xmas day evening when the man flu (which I actually now think was covid, set it) I was really looking forward to it, especially to the mainly shit show of 2020.

We’d planned on Xmas day at home just the 2 of us (plus the guys of course), and then Boxing Day Hollie, Dave and the kids were coming for a party. Oh how plans changed so quickly for everyone, - no mixing of households except for Christmas Day. 

Then on Xmas Eve the temperature dropped and our boiler broke, I cried and went back to bed. Now if you’ve ever broken a bone or suffered with bone pain you’ll know that the cold and damp does fuck all to help. So late Xmas Eve it was decided that I would go and stay at Hollies in the warm and Arron would join us Xmas day for dinner. It actually turned out really lovely, I was able to pop and see my brother and kids and had a lovely day - and of course I didn’t have to lift a finger as I’m not allowed anywhere near the kitchen so I just sat and played with the kids and did a bit (a lot) of karaoke! 


Fast forward to 29th December, I was at home, upstairs, tidying and as I went to go down the stairs I slipped and fell top to bottom. Ouch. We live in an old Victorian terrace and the stairs are STEEP to say the least, we have a tiny tiny square hallway (if you can even call it that) so my fall was broken at the bottom with my legs stretched out slamming into the front door. I must have tried to grab the wall or something because I pulled my left shoulder and lymphedema arm too, just to really add salt to the wound.

I was screaming, the pain was incredible. After about an hour of Arron trying his best to help me, he somehow got me back up the stairs and into bed with a hot water bottle, some codeine and a sleeping tablet. The next day is a blur really, I couldn’t move, every bone from my waist down felt like glass, more embarrassment there was a few times that I just couldn’t get to the toilet in time. Thankfully my new heated blanket I got from my Mom for Xmas was shared - thank the bloody lord - I’d have been lost without it!!

New Years Eve I was due my bone injection, I arrived at the chemo department - Arron had to drive me, there was no way in hell I could drive - I can hardly sit down. One of the chemo nurses came out to the reception and I burst into tears, she basically said I looked horrendous (in the nicest possible way), she called A&E and off I went.





Brilliant. Happy New Year.

Few hours later along with some morphine and a couple of scans I was told that I’d fractured my coccyx. 

Honestly you couldn’t make this up. I’m so angry with myself. I’ve literally been housebound, well bed bound for a month, the only place I’m semi comfortable is in bed. I’m also now the proud owner of a fucking pressure cushion. To make things just that bit worse my feet now keep going numb and my bladder appears to be in spasm.

It would appear that this year is going to be just as shit as last year.

2021 can fuck off, I’m done.